Tests, Treatment & Other Randoms…

Yesterday, I had a blood boiling moment… it wasn’t good… But they weren’t going to schedule my tests until December 3 and the Oncologist wouldn’t call me back for 24-48 hours to schedule my appointment…  The holiday is coming up after all… I was like seriously? I told her.. that means… I won’t see the Oncologist until after that… and chemotherapy won’t start until after that!!!! I called the nurse navigator.. and left a message, said that was just not acceptable…. that means this will have been left to grow… for 6 more weeks… I was a mess. I posted on the support group…. and someone suggested I call the Oncologist myself… I did. I was able to get the appointment pushed up… to December 2nd with him… and I’m going today for all of the scans, bone, abdomen, chest, etc… It angered me so badly, I told the nurse navigator in the message…. if you were in my shoes… would you want to wait another 2 weeks before even having these tests done? Seriously? They were worried about doing all my tests on the same day… I told her.. this is not about convenience… I’ll go wherever I have to go! Let’s just get this started! By the time she finally called me back… I said… I think I have it all worked out…… Not my best moment. But seriously, all this waiting… is so backwards…

Onto other topics… I’ve been asked what Greyson knows… Greyson knows that Mommy’s boobies are sick….. He is especially careful not to hurt my boobies, it’s so sweet… I told him that I am going to get my hair short, just like him…. and then when I lose it… I’m going to tell him that I wanted to be just like Daddy…. (at least I have that advantage since he is bald)… Greyson always tells me… I want to have big hair like you…. So, I would not doubt it… if after I lose my hair, he’ll want to be bald too…. My husband jokes… that we’ll have portraits done…. maybe we will!? Greyson currently has the funk that I have had… so I’m taking him to the doctor hopefully this morning… when he gets sick, due to his Premature Lung Disease… he gets very sick in his lungs right away…

I can’t remember if I updated about my hair cut on Tuesday… I’m looking forward to it! Diane Esposito from Split Second Sound is taking me to her salon, Planet 21.. and treating me to this haircut… she is so incredibly amazing. Along with that… Dayna from Carolina Cake Artistry is coming along… and she is donating her hair to Locks Of Love, I was so honored that she’d cut her hair off in honor of me…. and Katie O’Neil from MakeUp Your Face is coming along… to support us all… I told my husband… it’s so amazing how people have come together to help me… I’ve been so incredibly humbled by all of the outpouring of support… A special thank you to Lisa Walsh from Magnolia Room … they sent me an incredibly generous gift of meals from Dream Dinners. I’ve been so incredibly blessed. Thank you so much… with all of this help and love… I don’t think there is a chance I can’t beat this….

This weekend… I have several things on the agenda.. I need to find some organic hair dye.. and I’ll be dying my hair au natural (dark) until it falls out in a few short weeks…. and I need to go buy some slippers. I’m constantly freezing… I guess because of the way I’ve changed my diet, I’m losing weight…

My humblest love and gratefulness… ❤ Dawn

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2 thoughts on “Tests, Treatment & Other Randoms…

  1. Good for u! When I was first diagnosed it was the SAMETHING with wanting to schedule me weeks out. By the Grace of God I got n2 the Dr. I have been with for the past 8 yrs. when I first met with him, he was disgusted that no testing had been done 3 weeks n2 it! Honestly he flipped and all testing was done the next day and chemo began that week! Good for u girl for being ur own ADVOCATE! U go! Prayers and hugs hon!

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